Tag Archives: Ehlers-Danlos syndrom

Leah wrote asking if there were other parents of children with Ehlers-Danlos syndrome.  Her son was just recently diagnosed and she wanted to touch base with other parents to see how it had affected their children’s vision.  Her son Nolan’s vision went from “normal” to amblyopic with significant astigmatism in the course of one year, but hasContinue reading “Reader request – looking for other parents of kids with Ehlers-Danlos syndrome”