Stacie commented on Mia’s update and included a question that I wanted to put on up on the blog to reach others.
My 3 year old has just been diagnosed with congenital glaucoma. . . Are there any congenital glaucoma online parent support groups? I can’t seem to find one, and am toying with the idea of starting my own.
If you know of any such group, or if you’d be interested in joining one if one got started, you can email Stacie at connersmom @ petersengraphics . com, or leave a comment and I’ll get it to Stacie.
There are great support group for parents dealing with cataracts and glaucoma, yahoo APHAKIC (association of parents having a kid in contacts) and yahoo PGCFA (pediatric glaucoma and cataract family association) there is also the PGCFA website that has a lot of information on these eye conditions. There are a lot of parents that post on these forums that have been dealing with eye problems for years. The APHIKIC support group deals with cataracts, however 80-85% of children that have had cataract surgery develop glaucoma so this forum has a lot of information as well as the PGCFA group.
If anyone would like any information concerning cataracts or glaucoma please let me know firstname.lastname@example.org. My daughter is only 4 months old, however I have conducted a lot of research and I feel like I have been dealing with these conditions for years.
Thank you Danielle! I have a link to the APHAKIC group on the resources page, but I’ll add the PGCFA group, too.
Check out http://www.pgcfa.org for doctor-supervised advice and research and interactive “Ask the Doctor” section.
I am looking for an online support group for parents of children with congenital glaucoma or similar eye diseases.
I’m an adult with congenital glaucoma and recently started the Congenital Glaucoma Network (http://www.congenitalglaucoma.ning.com) for all people who have been affected by childhood glaucoma. This network was founded to facilitate discussion, provide support, and promote awareness. Please feel free to join us.
Thank you for posting about this Amy! I’ll add that link to our resources page.
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Thanks Ann. We appreciate it!
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Hi All, I just want to ask if anyone ever tried using medical cannabis as an alternative meds? I have read many articles about medical marijuana and how it can help you in terms of chronic pain, glaucoma, eating disorder/anorexia, anxiety disorders and panic attacks, inflammation, even cancer and a lot more. Like this article about glaucoma and marijuana from http://www.ilovegrowingmarijuana.com/glaucoma/. Cbd and thc are also new to me and I don’t even smoke. If this is true I cant find any solid conclusive evidence that speaks to its efficacy. Any personal experience or testimonial would be highly appreciated. Thanks
Have you guys ever tried using cannabis for medical purposes? I have been diagnosed with glaucoma for almost a year now and I’ve
been searching any alternative medicine that can help me then i came across this article that says marijuana can be used to treat
and prevent glaucoma. I’ve been planning to try this kind of strain here in https://blog.bonzaseeds.com/fire-og/ but i have no idea where to start or buy. Can you
guys give me any tips or any ideas that can help? Thank you and God bless !!