Bohring-Opitz Syndrome Awareness Day

Today, April 6, is Bohring-Opitz Syndrome Awareness Day.  Bohring-Opitz Syndrome is a rare genetic syndrome, with myopia being one of the common features of the syndrome.  You can read more here. Two years ago, Chad and Taylor shared the story of their daughter Talynn who has Bohring-Opitz Syndrome.  They’ve sent an update and some photosContinue reading “Bohring-Opitz Syndrome Awareness Day”

Your stories: Talynn’s story

A very big thank you to Chad and Taylor for sharing their daughter, Talynn’s, story of her journey through her first year of life, and her diagnosis of Bohring-Opitz Syndrome.  You can read more about Talynn’s journey at her blog, Open Eyes, or follow them on facebook or twitter. – Ann Z Talynn Gurganus was born onContinue reading “Your stories: Talynn’s story”