I always hear complaints of teenagers being selfish and rude but I’m not seeing it (this being one example this year). I did ask her if she got made fun of in school, she said that no one makes fun of her except her close group of friends but “they have permission to tease me.” This is the generation that is holds our future, teens who advocate for their friends in need despite the whiplash are superheroes in my book.
Category Archives: nystagmus
Your stories: Lucky Duck
Huge thanks to Tarsha for sharing this lovely letter that she wrote to her youngest son. He has albinism, is legally blind with esotropia and nystagmus. As she said, “Sometimes I think it’s harder on us than them.” – Ann Z My Dear Sweet JoJo (or Joseph as you prefer these days), Our days areContinue reading “Your stories: Lucky Duck”
Wobbly Wednesday – Your stories: congenital nystagmus
In honor of Wobbly Wednesday, I am very pleased that Laura has offered to share her and her son Samuel’s story of congenital nystagmus. – Ann From Samuel’s very first check up at the doctors at 8 weeks I knew something wasn’t right. Even though he said everything was fine I couldn’t settle. I askedContinue reading “Wobbly Wednesday – Your stories: congenital nystagmus”
Wobbly Wednesday: Nystagmus Awareness Day
Today, Wednesday, November 5 is the second annual “Wobbly Wednesday“, the international Nystagmus Awareness Day. What is nystagmus? Nystagmus is an eye condition that is characterized by rapid, involuntary eye movements. Those movements can be side-to-side, up and down, or rotary. Those eye movements may reduce a person’s vision, and are often associated with otherContinue reading “Wobbly Wednesday: Nystagmus Awareness Day”
All About the Eye Doctor: an 8 year old’s account
Megan is 8 years old, she’s worn glasses since she was 10 months old for nystagmus. She wrote (on her own) a fantastic piece for her local paper that’s all about going to the eye doctor. It’s a great read, especially if your child is wondering what a trip to the eye doctor willContinue reading “All About the Eye Doctor: an 8 year old’s account”
Your stories: Growing up with congenital nystagmus
I love sharing stories of people who grew up with glasses, I think it helps me to hear what their childhood were life. I am so pleased that Nitie agreed to write about her experiences growing up with nystagmus. Many, many thanks, Nitie! -Ann Z Growing Up with Congenital Nystagmus Hello my name is NitieContinue reading “Your stories: Growing up with congenital nystagmus”
Your stories – Our experiences with a teacher of the visually impaired
Many thanks to Sarah who sent in her account of working with a teacher of the visually impaired. – Ann Z My nearly four-year-old daughter Isabella has multiple ocular diagnoses: severe hyperopia (farsightedness), astigmatism, mild macular hypoplasia (“underdevelopment of the macula, a small area on the retina responsible for seeing in detail” – read more)Continue reading “Your stories – Our experiences with a teacher of the visually impaired”
your stories: growing up legally blind
Many thanks to Melissa for sharing her story about growing up legally blind. I hope you enjoy it, and find it as helpful as I did. You can read more of Melissa’s writing at her blog, Wisdom from the Other Side. – Ann Z I went through it all as a kid. I had myContinue reading “your stories: growing up legally blind”
Reader request: Looking for other parents dealing with optic nerve hypoplasia, nystagmus, and myopia
This plea was posted by Dawn in our facebook group. She asked if I could post here, too to see if anyone has dealt with something similar. -Ann Z My daughter is 13 months old, and I took her to the eye doctor today. She has optic nerve hypoplasia and nystagmus, but to top itContinue reading “Reader request: Looking for other parents dealing with optic nerve hypoplasia, nystagmus, and myopia”
For Little Eyes 