I’m posting this update on Mia from Danielle. -Ann Z
Mia finally received her contact lens with a prescription of +8. We had to try 3 different contact lenses and all 3 were sliding around inside her eye. Due to Mia’s glaucoma her eye is not shaped normal and is what the doctor called “steep” so her optometrist had to order a custom fit contact that will stay in place. Mia will have to wear a contact that slides until her new lens comes in. It was crazy how good Mia was through all of this, I had to insert and remove 3 different lens and she didn’t cry. The last lens we tried was slightly thicker and more rigid and must have been uncomfortable sliding around, however she only tried to rub her eye a few times. I think she was much too busy trying to get off my lap so she could go through the cabinets in the doctors office. It amazes me how comfortable she is at all of her eye appointments, she screams the entire time we are with her pediatrician, however her PO is a different story. We find out in 3 weeks what we will be doing with her glaucoma valve and scarring on her cornea. I will keep everyone updated.
Back to the contact lens, I have this routine I follow every morning, mind you I work evenings and I don’t get home until after 12am and I have to submit a daily report, so I don’t get to bed until 2 or 3am. Needless to say, I am up with the kids at around 8am, 9 if I am extremely lucky. So inserting a contact lens on only a few hour so of sleep can be difficult. I need to have caffeine before I even attempt. Once I get the contact lens in, Mia is fine, she seems very comfortable wearing a contact lens. We have an in ground pool so when I take the kids in, I have to take Mia’s contacts out before going into the pool, and back in when she gets out.
Mia’s aphakic eye is extremely light sensitive, she has this squint that we call the “Popeye squint”, she is so light sensitive that she either squints or covers her eye when she is outside. I just wish she could go outside and enjoy a sunny day like her brother. Sorry, back to the contact, this evening while I was at work my husband called me in a panic, Mia was crying and screaming for almost an hour. My husband thought her contact lens folded or slid up under her upper lid and he could not find it. I had to rush home from work and when I got home Mia was clamping her eye shut and she did not want me near her eye. We had to hold her down while she was screaming so I could get the lens out. This was the 4th day we used this lens and we have not had any problems until this evening. I can’t imagine how she will react when I try to insert her lens tomorrow morning, it must be so irritating having a lens sliding around inside your eye. I just wish they sized her eye during her last appointment. We had to wait so long for her contact lens and now it doesn’t fit right and slides around. My poor little angel has endured so much. I just wish I could take it all away. Sorry, I’m just venting, it so hard watching her go through this.
On another note, Mia had her 1st birthday about 3 weeks ago (I can’t believe she is 1 already), I got the kids these silly glasses with different flowers and animals glued along the frame. My mother had to hold Mia’s arms so we could take a picture of her with these glasses on. She is still very stubborn about wearing glasses, even when they are pretend glasses.