Rare Disease Day: With research possibilities are endless!
Today, February 28 is Rare Disease Day. This is a day to raise awareness around rare diseases and the need for research. With only 5% of rare diseases having a cure, […]
Category Archives: idiopathic Ectopia Lentis
Better and better…
My son Nicholas has ectopia lentis, a congenital condition that causes his natural lenses to move, or dislocate, from their normal position. As a result we’ve had to manage high myopia, anisometropia, amblyopia, […]
What, no lifetime warrantee?
It’s been some time since I last posted an update regarding my son Nicholas and his experiences with glasses and patching. N has ectopia lentis, a congenital condition that causes […]
a bird, a cake, a hand, a phone
A few weeks ago we left the PO’s office with some discouraging news. Nicholas’s left eye was not doing as well as in previous visits. Upon reading the eye chart, […]
Your stories – a little boy in glasses
My name is George, my wife is Alexandra, and our son’s name is Nicholas. Nicholas turned two as of August of this year. Our experiences with glasses, patching, and pediatric […]
For Little Eyes 