Your stories: Jack’s Journey with infant cataracts

Many thanks to Lindsay for sharing this story about her son Jack who has congenital cataracts.  She blogs about his story at Jack’s Journey.  -Ann Z Jack was the picture of health for the first 2 months of his life.  He hit all of his milestones on time, if not early.  That’s why we wereContinue reading “Your stories: Jack’s Journey with infant cataracts”

Your stories: winning against uveitis

This story came from Natalie.  -Ann Z 1 in a 1000 children are living with juvenile arthritis. My 3 year old daughter is one of them. She was diagnosed at 20 months. Around 20% of these children, particularly young girls, are eventually diagnosed with uveitis. For my daughter, this happened one year after her originalContinue reading “Your stories: winning against uveitis”

Your stories: you make the best decision based on the information you are provided with

This update comes from Danielle, whose daughter Mia had cataract surgery as an infant, and continues to deal with glaucoma, patching, and contacts.  You can read more of Danielle’s posts about Mia here (introducing Mia, after her second glaucoma surgery, occluding lens for patching, glaucoma valve shifting and corneal scarring, Mia’s contact lens).  -Ann ZContinue reading “Your stories: you make the best decision based on the information you are provided with”

Reader question – baby not keeping her glasses on anymore

This question came in from Nicole, whose 6 month old, Penny, wears glasses because of congentital cataracts. I need a little bit of help. The last few days or so, I cannot get Penny to keep her glasses on. I can distract her for a few minutes, but as soon as I turn away, sheContinue reading “Reader question – baby not keeping her glasses on anymore”

Update on Mia: glaucoma valve shifting and corneal scarring

Danielle posted this comment recently, and I wanted to post it on the blog for anyone else dealing with glaucoma or cataracts.  -Ann Z I just wanted to give everyone an updated on Mia, she went in for an EUA (exam under anesthesia) on Thursday.  Her PO told us that her glaucoma valve shifted evenContinue reading “Update on Mia: glaucoma valve shifting and corneal scarring”

occluding lens for patching

This post comes from Danielle, who’s daughter, Mia, had a cataract in one eye.   If you’re new, you may also want to read Mia’s story and update. – Ann Z Our daughter Mia just received an occluding contact lens that she will use as a means for patching her left eye. She began wearing aContinue reading “occluding lens for patching”

update on Mia

From reader, Danielle: I wanted to give an update on Mia and her progress; and to maybe vent to other parents going through similar situations. Mia just had her 2nd surgery on Tuesday for glaucoma.  After her first surgery when she was 1 month old to have a cataract removed from her right eye, herContinue reading “update on Mia”

your stories – cataracts

I’ve moved this post from the comments, because I wanted to have it on the front page for everyone to read.  I really love reading everyone’s stories about their kids and their glasses – I feel like I’ve learned so much from them, and I hope others do too.  Please keep them coming (as alwaysContinue reading “your stories – cataracts”