Many thanks to Lindsay for sharing this story about her son Jack who has congenital cataracts. She blogs about his story at Jack’s Journey. -Ann Z Jack was the picture of health for the first 2 months of his life. He hit all of his milestones on time, if not early. That’s why we wereContinue reading “Your stories: Jack’s Journey with infant cataracts”
Category Archives: cataracts
Your stories: winning against uveitis
This story came from Natalie. -Ann Z 1 in a 1000 children are living with juvenile arthritis. My 3 year old daughter is one of them. She was diagnosed at 20 months. Around 20% of these children, particularly young girls, are eventually diagnosed with uveitis. For my daughter, this happened one year after her originalContinue reading “Your stories: winning against uveitis”
Your stories: you make the best decision based on the information you are provided with
This update comes from Danielle, whose daughter Mia had cataract surgery as an infant, and continues to deal with glaucoma, patching, and contacts. You can read more of Danielle’s posts about Mia here (introducing Mia, after her second glaucoma surgery, occluding lens for patching, glaucoma valve shifting and corneal scarring, Mia’s contact lens). -Ann ZContinue reading “Your stories: you make the best decision based on the information you are provided with”
Reader question – baby not keeping her glasses on anymore
This question came in from Nicole, whose 6 month old, Penny, wears glasses because of congentital cataracts. I need a little bit of help. The last few days or so, I cannot get Penny to keep her glasses on. I can distract her for a few minutes, but as soon as I turn away, sheContinue reading “Reader question – baby not keeping her glasses on anymore”
Mia’s contact lens
I’m posting this update on Mia from Danielle. -Ann Z Mia finally received her contact lens with a prescription of +8. We had to try 3 different contact lenses and all 3 were sliding around inside her eye. Due to Mia’s glaucoma her eye is not shaped normal and is what the doctor called “steep”Continue reading “Mia’s contact lens”
Update on Mia: glaucoma valve shifting and corneal scarring
Danielle posted this comment recently, and I wanted to post it on the blog for anyone else dealing with glaucoma or cataracts. -Ann Z I just wanted to give everyone an updated on Mia, she went in for an EUA (exam under anesthesia) on Thursday. Her PO told us that her glaucoma valve shifted evenContinue reading “Update on Mia: glaucoma valve shifting and corneal scarring”
occluding lens for patching
This post comes from Danielle, who’s daughter, Mia, had a cataract in one eye. If you’re new, you may also want to read Mia’s story and update. – Ann Z Our daughter Mia just received an occluding contact lens that she will use as a means for patching her left eye. She began wearing aContinue reading “occluding lens for patching”
encouragement
I ran across this post this weekend: The frustrated princess, the gracious mother and the good eye doctor and I had to share it with everyone. The post is written from the perspective of someone who had glasses at a very young age, she talks about having cataract surgery at age three, and having toContinue reading “encouragement”
update on Mia
From reader, Danielle: I wanted to give an update on Mia and her progress; and to maybe vent to other parents going through similar situations. Mia just had her 2nd surgery on Tuesday for glaucoma. After her first surgery when she was 1 month old to have a cataract removed from her right eye, herContinue reading “update on Mia”
your stories – cataracts
I’ve moved this post from the comments, because I wanted to have it on the front page for everyone to read. I really love reading everyone’s stories about their kids and their glasses – I feel like I’ve learned so much from them, and I hope others do too. Please keep them coming (as alwaysContinue reading “your stories – cataracts”