I recently ran across The Smile Challenge: Smile for Glaucoma facebook page. It aims to bring awareness to glaucoma and raise money for the Glaucoma Research Foundation by encouraging people to share photos of their smiles and stories about their experiences with glaucoma. The page is only a few months old, but has already reached hundredsContinue reading “Smile for Glaucoma: an interview with the founders”
Category Archives: glaucoma
Pediatric Glaucoma
As we come to the end of January, which this year is Glaucoma Awareness Month, I wanted to post a few resources for families who are dealing with pediatric glaucoma. Glaucoma is a leading cause of blindness, and while older people are more at risk, glaucoma can occur at any age. Pediatric or Childhood GlaucomaContinue reading “Pediatric Glaucoma”
Your stories – Dear Easton
January is Glaucoma Awareness month. I hope to feature stories this months about children with glaucoma. Amanda was kind enough to share this post that she wrote for her son, that was originally published on her blog See the Distance. – Ann Z My son, Easton was born with a severely cloudy Cataract in hisContinue reading “Your stories – Dear Easton”
New eyecare links on the resources page
I’ve recently learned about, and subsequently added some new links on the resources for parents page, and wanted to bring them to your attention. Thanks to everyone that has suggested sites, and please, keep them coming! If there’s a helpful website or great community out there, I want to list it. Reference resource Eye ResourcesContinue reading “New eyecare links on the resources page”
Your stories: you make the best decision based on the information you are provided with
This update comes from Danielle, whose daughter Mia had cataract surgery as an infant, and continues to deal with glaucoma, patching, and contacts. You can read more of Danielle’s posts about Mia here (introducing Mia, after her second glaucoma surgery, occluding lens for patching, glaucoma valve shifting and corneal scarring, Mia’s contact lens). -Ann ZContinue reading “Your stories: you make the best decision based on the information you are provided with”
Getting eye pressure checks with a three year old without anesthesia
I just read a fantastic post over at Christopher’s Eyes that I wanted to pass along. Christopher is three, and has congenital glaucoma, which means many, many appointments to check his eye pressure. For young kids, this means an exam under anesthesia (EUA), which is a huge production requiring a trip to a hospital andContinue reading “Getting eye pressure checks with a three year old without anesthesia”
Mia’s contact lens
I’m posting this update on Mia from Danielle. -Ann Z Mia finally received her contact lens with a prescription of +8. We had to try 3 different contact lenses and all 3 were sliding around inside her eye. Due to Mia’s glaucoma her eye is not shaped normal and is what the doctor called “steep”Continue reading “Mia’s contact lens”
Update on Mia: glaucoma valve shifting and corneal scarring
Danielle posted this comment recently, and I wanted to post it on the blog for anyone else dealing with glaucoma or cataracts. -Ann Z I just wanted to give everyone an updated on Mia, she went in for an EUA (exam under anesthesia) on Thursday. Her PO told us that her glaucoma valve shifted evenContinue reading “Update on Mia: glaucoma valve shifting and corneal scarring”
Diving into Congenital Glaucoma – Head First
Wow. I finally have something “important” enough to blog about. Thanks Ann for the opportunity! I don’t think I can express just how much I truly appreciate it. First, an introduction. My name is Stacie. I’m a married working mother of 3 beautiful children. Aaron is 14 and has Aspergers (high-functioning autism), Jamie (my girl)Continue reading “Diving into Congenital Glaucoma – Head First”
Congenital glaucoma support?
Stacie commented on Mia’s update and included a question that I wanted to put on up on the blog to reach others. My 3 year old has just been diagnosed with congenital glaucoma. . . Are there any congenital glaucoma online parent support groups? I can’t seem to find one, and am toying withContinue reading “Congenital glaucoma support?”
update on Mia
From reader, Danielle: I wanted to give an update on Mia and her progress; and to maybe vent to other parents going through similar situations. Mia just had her 2nd surgery on Tuesday for glaucoma. After her first surgery when she was 1 month old to have a cataract removed from her right eye, herContinue reading “update on Mia”