Help Little Four Eyes celebrate our 3rd Birthday!

March 15, 2011 will be the 3rd birthday of Little Four Eyes!  It feels a little like a birthday of one of my kids, amazing that it’s been that long, and at the same time surprising that it’s only been 3 years.  I do love this community and all the support and help and stories that has come from all of you.

If you’ll indulge me, I’d love your help in celebrating the past three years.  What I’d really like is some more artwork for the blog, and thought perhaps I could enlist the talents of your kids.  Scan or take a picture of any of the coloring that your kids have done with our coloring pages, or any of their own drawings / paintings /what have you, that have something to do with glasses, and I’ll feature them on the blog.  (By the way, I’ve added 2 new coloring pages by Meagan Nishi, but I’d love to see any of our pages colored.)  Send me any artwork to ann@shinypebble.com – by sending them to me, you’re giving me permission to post the pictures on Little Four Eyes.

Your stories – our guy … with glasses

Cheri wrote this story of her whole family getting involved to help her youngest son, Reid, a young boy with Down syndrome, start wearing glasses last summer. The story was originally published on her blog “Raising Reid” and is reprinted here with her permission.  Thank you for sharing, Cheri! – Ann Z

Well, our newest bump in the road has been that Reid’s eyes have started to drift inward…sometimes more his left and then sometimes more his right, and often both eyes at once. We went to see the eye doctor and we were told he was very farsighted, which is what we were told last time as well…except this time they said now that he is older and his attention is held longer on items and he is focusing more to see things up close his eyes are drifting. To help strengthen those muscles we were told it was time for glasses.

I was not sure how he was going to take to glasses….so we set a plan in motion. While we waited the week for the glasses to come in I sent away for some books on getting glasses. We read and read those books in preparation, we oogled and ogled over anyone and everyone we saw in public or on tv that had glasses, and we bought Luke some frames because Luke is Reid’s hero and if Luke will wear glasses chances are better Reid will follow suit. …actually this was a surprise to Luke, I could tell he secretly wanted glasses so when I went back yesterday to pick up Reid’s glasses I asked if they had any discontinued frames that did not have any prescription in the lenses..and viola they did and now Luke has glasses too.

When I walked out of the office with the glasses I quickly took Reid’s out to see just how strong the prescription was and …honestly my heart suddenly had this very sad feeling. I just sat in my car for a bit with that old familiar feeling of being hit in the gut when you realize your child will have one more struggle. When I looked through those glasses I could barely see anything…geez louise they are strong. The poor thing has been living with incredibly blurred vision all this time and it really made my heart sad.

We decided to “unveil” the glasses as if it was a present. We handed Luke his present first with prior directions to cheer and act excited when he opened his case (which truly he was excited to be getting his own glasses 😉 ) and then we handed Reid his….which he opened excitedly with all of us standing near cheering, and then we had Toby put his glasses on that we had to dig out of the archives.

Below are pictures from the big “reveal” of the glasses.Continue reading “Your stories – our guy … with glasses”

Elly’s Princess Peepers Picks a Pet Contest Entry

After I read the contest to Elliana, she immidiately got out her water color paints and asked if I would draw her a “gigantic dragon” just like Princess Peepers has, so that she can act out the book and pretend to be Princess Peepers.

How could I resist such a sweet request? So, of course, we got to work right away. Here is a picture… of course, you will need to check out Pam Calverts site or facebook for our final entry =)  Hope you all take a minute today to visit http://wwwpamcalvert.blogspot.com/, enter the new competition,  or shop for the new book!  I reccomend it for our older preschool / kindergarten age kids!  Here is a link to a review http://www.kirkusreviews.com/book-reviews/childrens-books/pam-calvert/princess-peepers-picks-pet/

Link round up – March 1, 2011

I’ve come across a pretty random assortment of links recently, on topics of vision therapy, cataracts, and a do-it-yourself iPhone app for vision testing.

  • Questions for doctors – Stewart Snippets recently learned that her 2 year old son has lamellar cataracts.  She wrote a wonderful list of questions for her son’s doctors.  The questions are worth checking out and keeping in mind for doctor’s appointments, no matter what your child’s diagnosis.
  • Red Eye Reflex – Jack’s Journey has a great post – with lots of pictures – about red eye reflex in photos, which can be a sign of cataracts (it can also be a sign of a really good camera with red eye reduction).
  • Vision Therapy Video – This is a short video giving a concise explanation of vision therapy, with particularly good explanation of how visual problems can lead to difficulties with reading.  If you’re looking for a quick introduction to VT, this is a good place to start.  Via Bright Eyes News.
  • Vision Testing App, iSight Test – There’s a new app available for the iPhone/iPad that allows you to assess visual acuity at home.  The app was developed by ophthalmologists and a pediatric orthoptist.  The app gives parents the ability to track their child’s visual acuity during amblyopia treatment in between  eye doctor visits.  Obviously, this app would not take the place of vision exams, but rather give parents a tool to use in between visits.  Quick note, the app uses and was created by Kay pictures, which were developed in part by Hazel Kay, author of Hoppity Frog has Two Clever Eyes, and a pediatric orthoptist.  Watch for a more detailed review of the app.

the wings on the fly

Zoe went in for her  first appointment since she started patching.  She’s been patching 4 hours every day for 7 weeks.  She’s certainly told me multiple times that she doesn’t want to wear a patch, but to her credit, she’s worn the patch every single day without fail.  I was hoping we’d see some progress at the appointment, but I’d be lying if I didn’t say I was worried.

This time she read the charts with no hesitation, with both eyes.  Just 7 weeks ago, I’d watched her struggle to identify the shapes when she had her left eye covered, but there was no struggle this time.  Even better was later when her ophthalmologist put the polarized glasses on her and showed her that picture of the fly where the wings look like they come out of the picture.

“Can you see the fly’s wings?” asks the ophthalmologist.

“Yes!” says Zoe.

“Can you pinch them?”

She reaches above the picture with her hand.  “No, actually I can’t,” she says, clearly puzzled by the whole thing.  I almost cried.  And we try to explain what’s going on, and why it’s a good thing in words that a 4 year old would understand.   Then the ophthalmologist asked Zoe to look at the animal pictures on the other side of the test.  All of a sudden Zoe started excitedly talking about all the different parts of these different animals that were coming off of the page.  Crazy!

We’re going to try tapering off Zoe’s patching:  2 hours per day for the next 2 weeks, then 1 hour per day for another 2 weeks, and then a follow up exam 2 weeks after that.

I’d love to say that there was something that we did these last 7 weeks that was the key – that there was some quick tip or trick I could pass along that would cure every child’s amblyopia.  But I want to be clear: we were extremely lucky.  Yes, Zoe did a lot of work with the patching, and I’m so very proud of my girl for doing it, day after day, at school, at church, even at birthday parties, and even though she often told me she didn’t like it.  But I’ll reiterate, we were lucky. Zoe’s amblyopia was mild to begin with, I didn’t catch what her acuity was in her weaker right eye when we started patching, but it wasn’t awful.  Good enough that she could pass a vision screening at her pediatrician’s visit without triggering a referral in any case, which means better than 20/40.  But since she’s been seeing the same eye doctor for over 3 years, her doctor saw her right eye’s acuity had dropped since her last visit 6 months ago, and had us start the patching right away.  So it was mild, and caught early.  And the fact that her bad eye wasn’t that bad meant that while patching was not fun, she could still function relatively well with her good eye patched, which no doubt helped with compliance.

Princess Peepers Update!

The sequel to Princess Peepers is out!  Princess Peepers Picks a Pet is just a delightful, charming, and witty as the first (I will save the details for another post)  In honor of this new book, author Pam Calvert is hosting a contest / give-away for this Grand Prize Princess Prize Pack on her blog.  Many ways to enter http://wwwpamcalvert.blogspot.com/2011/02/princess-peepers-picks-pet-contest.html

Reader request: anyone dealing with a young child in glasses and hearing aids

I just saw a question posted on the Little Four Eyes facebook group.  Amy is hoping to connect with others who have a young child who wears both glasses and hearing aids, and wondering how to get her son to wear both.

Anyone out there dealing with the same thing?  Leave a comment here, or at the facebook group.

Hoppity Frog Has Two Clever Eyes Book Review

Elliana and I were asked if we would review the book Hoppity Frog Has Two Clever Eyes, by Hazel Kay, illustrations by Joseph Kay, a product of www.kayfunpatch.com It is a cute little rhyming book geared for pre-school and kindergarten age children that tells the story of when a little frog named Hoppity gets glasses and begins patching.  Hoppity can’t win at playing catch the flies and when a lady comes to check everyone’s eyes,  Hoppity can’t see them and his parents take him to  the optician, orthopist and ophthalmologist.   He is told he has amblyopia and will need glasses and a patch.  In the end, his amblyopia goes away and he is not wearing glasses anymore.

The illustrations are simple and cute.  Elliana was excited to see that the pages were in black and white for her to color and immediately began coloring it as a gift  “for a friend who wears glasses.”  I thought the concept of a coloring book / learning book was great and I wish there were more of these available for parents. (Elly’s coloring of a page below)

Although I love this concept, I did however change the wording as I read it to her.  This book actually hit me hard and made tears come to my eyes.  (I read all books myself before reading them with my children) It is supposed to be a cute story about getting glasses, but in all 17 pages,  Hoppity only wears glasses on 3 pages.  In the end, he has clever eyes, and NO glasses.  My baby will always have glasses and I consider her to be one of the most clever children I know.  Also, it is my personal opinion not to use the word lazy.  In no way shape or form would I ever use that to describe my child and I have chosen not to use the term “lazy eye”  with her.  We use strabismus and amblyopia.  She has worked to hard with patching 6-12 hours a day for almost 2 years and has gone through 2 surgeries and their recoveries to be considered lazy.  I do so wish they would not have ended it with his glasses laying on the ground and his Amblyopia gone.  My daughter will always need glasses no matter how good she is at patching. Due to the author’s choice of ending, I have removed the last few pages of the book and ended it at “Hoppity thinks his glasses are cool.  He is excited to show all of his friends at school.”  We can now enjoy the book and I feel better knowing that it goes along with the message I want to send to my kids about glasses and patching.

bribes?

I see a lot of comments and questions from parents with kids just starting out with glasses wondering if they should use bribery to get their child to wear their glasses, or feeling guilty for bribing their child.  I’m betting that a lot of us used bribery in the beginning to help our children get used to their glasses.  Once your child sees (pun intended) what their glasses do for their vision, most will wear their glasses without extra encouragement.  It’s just getting them to that point that’s the trick.

So how about you?  Did you (do you) use bribery to get your child to wear his or her glasses?  If so, what have you used?  If not, what other strategies did you use to encourage your child to leave the glasses on?

LOVE EM

Glasses do not define who are children are, but they most definitely are a big part of who are kids are.   I love how this home-made T-shirt flaunted this toddler’s adorable glasses!  Some of you moms are just so creative!  If you haven’t yet found some reason this week to celebrate your love for glasses (they do change the way our kids see the world) make a shirt, print a valentine, talk about how wonderful they are, or smile at your kid in glasses – they are truly something to love!

Better and better…

 My son Nicholas has ectopia lentis, a congenital condition that causes his natural lenses to move, or dislocate, from their normal position.  As a result we’ve had to manage high myopia, anisometropia, amblyopia, and the associated patching, glasses, replacement glasses, and even more replacement glasses since he was 6 months old.  A few months ago I posted about his surgery to remove the natural lens of his left eye and replace it with an intraocular lens.  Back with an update. 

Pleased to report that the healing / recovery throughout the intervening months has been uneventful.  The new lens is well centered, clear, and most importantly..providing good vision.

Prior to this surgery, N’s prescription has progressed to  -8.5 R and -23L and we worked diligently with his PO to ensure the patching routine was followed and we adhered to all follow up and recommendations.  This past week we were very pleased to experience the results of all the effort. 

After 4 years of prescription changes, extended patching, a surgery, some stiches here and there…and all the other challenges associated the PO shared with us the following…20/30 (with correction) bilaterally.  A first for us…ever.  Not only that, but patching time is reduced!   We go forward knowing the effort invested helped to maintain vision to the best possible given the circumstances, the right eye remains stable, and with a little luck and continued persistence his vision will remain the best it can possibly be.

you know you have a kid in glasses…

I did this a long time back, but thought it would be fun to add to the list.

So, you know you have a kid in glasses when…

  • your child owns at least one shirt with a character wearing glasses.
  • at least one of your child’s dolls, bears, or other stuffed animals has it’s own pair of glasses.
  • you’ve spent hours searching frantically in your house, garage, and yard for the glasses for that doll.
  • once you’ve found the glasses, you notice that they just keep sliding down the doll’s face and you consider taking the doll to the glasses shop to get them adjusted because it’s driving you crazy.
  • when a friend posts pictures of their children, the first thing you do is look closely at the child’s eyes to make sure they don’t have any signs of vision issues.
  • you have trouble picking your child out of a crowd if she’s taken her glasses off.

What else have you got?

Your Grrrrrrrrrrrrrrrrrreat!

I saw this craft over at Mer Mag and thought of all my patching parents. They were just too cute not to share. Wouldn’t these make ADORABLE valentines for your child’s class or even as a reward for patching. Merrilee has instructions, more pictures, and downloadable patterns for the girl and boy pirates.  http://mermag.blogspot.com/2010/02/arrrr-you-ready-for-some.html

Discussion between ophthalmologist and optometrist!

If your child has amblyopia and/or strabismus, you’re going to want to check this out: “Do You See With Your Eyes Or With Your Brain and … What Difference Does It Make?” on The VisionHelp Blog.

I know about it thanks to Stella’s developmental optometrist, who emails relevant vision-related news and helpful educational opportunities and resources to her patients and colleagues. Tonight she shared a link to an engaging discussion between Dr. Press, a developmental optometrist and Board Certified Fellow of the College of Optometrists in Vision Development (COVD) who contributes to The VisionHelp Blog, and Dr. Granet, a prominent ophthalmologist. Really! They communicated with each other! And did a wonderful job of it, too. Though some of their chat is very expert-level, and therefore hard to follow, I was able to glean interesting points and find references to studies worth checking out. Hope it’s helpful to someone out there!

Dr. Press’ review (on The VisionHelp Blog) of Dr. Granet’s appearance on TV’s “The Doctors sparked this online dialog. Dr. Granet should be applauded for taking the time to respond to the (relatively mild) critique of his comments on amblyopia treatment, along with the optometrists who continued to engage him diplomatically yet honestly. You may’ve seen the video segment from the show, in which Dr. Granet tests a young toddler  for vision problems due to a family history of amblyopia. I really felt for the mom and dad, who found out in front of a live audience that their child likely does struggle with her vision. I remember that moment hitting me hard in the privacy of a small exam room. But as pointed out by “The Doctors,” early detection is something to be thankful for, and they’ve got it on their side.

In the comment section you’ll find an interesting conversation in which the disconnect between ophthalmologists and optometrists is taken on directly and in a very civil fashion. I couldn’t help but chime in (possibly coming across like a hysterical idiot parent, but hey, I tried!) and I hope you will, too. After all, it’s been talked about here on Little Four Eyes frequently. The lack of clarity many of us face in making decisions about our children’s care would be alleviated greatly if the two fields could find a way to collaborate or at least communicate. This comment section interaction seems like a step in the right direction. Stella’s doctor thought it was great and I agree.

One last time, here’s the link to the post and ensuing discussion:

Do You See With Your Eyes Or With Your Brain and … What Difference Does It Make?

(P.S. The video seems worth sharing, if only to convince other parents that eye exams are a great idea for all little ones and to show them how accurate testing can be even on babies as young as six months.)

Cute video: peek a boo with glasses

Jack’s Journey just posted a video of her son Jack playing peek a boo with his glasses. It’s very, very cute!